What a year! At last check in, Ian was experiencing some issues with breakthrough seizures. It was normal for him to have these about once a year- with him being a kid and still growing, naturally, his seizure medications needed to be adjusted to accommodate this change. But with 2025, we found we were having the hardest time getting the… Continue reading Ian Update
Ian had a routine follow up appointment with neurology today. Currently, Ian is stable, but that wasn’t the case for the previous 2 months. Ian was having what is known as “breakthrough absence seizures.” He was seizure free for about a year, when all of a sudden, he began experiencing staring spells consistent with what his seizures tend to look… Continue reading Ian Update
Ian had a neuropsych evaluation on November 26th, and we got those results on December 9th. Ian was officially diagnosed with a mild intellectual disability. While not surprised with the findings, something about hearing it out loud just made my heart sad. Ian was always behind compared to other kids his age, but before the brain injury, he had such… Continue reading Ian Update
September 14, 2022. The day Ian’s life, and ours, would be changed forever once again. The first time was his inital diagnosis. This time, it was the beginning of a new medical journey. On this day two years ago, we went in for Ian’s routine MRI. We had been getting them every 3 months since July 2019, so we were… Continue reading Two Years Since Brain Injury
Ian had a couple of doctor appointments this past week. On Tuesday, we added a new specialty in the mix and saw ENT for the first time. Around December, Ian developed a cough that we had the hardest time getting to go away. Around the same time, Ian was admitted to the hospital for breakthrough seizures, so they tested him… Continue reading Ian Update
When Ian was diagnosed with his brain tumors in July 2019, we have gone down to Children’s every 3 months since then to get new images of his tumors. So, today was one of those routine scan days. We did just get images a few weeks ago when he needed emergency surgery with his shunt placement, but today’s scan was… Continue reading Ian Update
It feels good to sit down and write again. Well, type. Life has been extremely crazy busy, and I definitely needed every and any free moment I had and used it to just exist. To just take up space. Do nothing. And heal. Now that some time has passed, I feel ready to share the latest on Ian. Something that… Continue reading Ian Update
““Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.” 2 Corinthians 1:3-4 What blessings we have been given recently. Especially with our little… Continue reading Ian Update
We are possibly adding another set of hands inside our specialist pot. Today, we took Ian to his PCP. He has had a cough since December, with no clear sign of any illness. He was tested for all the big stuff back then- RSV, Covid, and flu. Everything came back negative. This was the same time Ian had his breakthrough… Continue reading Ian Update
With the hustle and bustle of Gabby’s birthday, her party, Mother’s Day, and everything else in between that is our normal, daily life, I haven’t had the opportunity to update on Ian’s recent appointment with Endocrinology. Another specialist we see to make sure our boy is thriving. We started seeing endo after Ian’s brain injury. Between the brain injury itself… Continue reading Ian Update- Endocrinology Appointment