Ian turns 6 tomorrow. While the kids’ birthdays normally make me upset that they are getting older, this year I’m more appreciative to spend another year. With both of them. It was almost 10 months ago that I sat at Ian’s hospital bed side, praying that he would get to celebrate his 6th birthday. Holding his little cold hand, looking… Continue reading Ian’s 6th Birthday
It’s been almost 9 months since Ian’s inital brain injury. His brain injury occurred after one of his brain tumors hemorrhaged. Not only did it cause bleeding on the brain, but it also caused severe hydrocephalus. Hydrocephalus is when cerebral spinal fluid builds up because it has no place to go. This causes intense pressure on the brain as it… Continue reading Ian Update- 9 Months After Brain Injury
It’s hard to believe that next week marks the first day of June. My kids start summer break next week, and we all know Memorial Day marks the unofficial start of summer, opening up pools and water parks. But did you know that May is Brain Tumor Awareness Month? As this month comes to an end, I thought I would… Continue reading Go Gray in May
In July of 2019, right before our youngest was about to turn 2, our world got turned upside down when he was diagnosed with inoperable, multifocal brain tumors. You never think it will happen to you. Until it does. Up until that point, Ian was a normal-developing one-year-old. He was like most little boys, loved getting rowdy and dirty and… Continue reading Ian’s Cancer Journey
Since Ian had an oncology appointment yesterday, I thought I would write a little update on how his treatment is going. We’ve enjoyed the opportunity to get to give Ian a pill at home versus a weekly infusion. This could still be in our future in addition to the medication he is on now, but we’ll see what his next… Continue reading Ian Update
It’s been a couple weeks since I gave an update on Ian. It’s been fairly uneventful in our household, which is welcomed after the last few months we had. Something major that did happen recently is Ian started his new treatment. It’s not the chemotherapy I think most of us expect when hear those words. He doesn’t need to go… Continue reading Ian Update
The idea that a new year is a clean slate is just that- an idea. While you can find comfort in it being a new beginning of sorts, it doesn’t mean every problem you ever had just magically disappears. But yet, I find myself happy to say goodbye to 2022, and all I can do is pray that 2023 will… Continue reading Ian Update
Night of 12/22/22 I’m currently snuggled up on my couch with Ian, watching Moana for the hundredth time, as I type this out. But it’s a moment I wouldn’t trade for the world. We are slowly getting back into our life and new routines. Ian is back in school 3 days a week for part of the day, outpatient therapy… Continue reading A Holiday Update
It’s been a little over 2 weeks since we’ve been home now. Honestly, it feels like days are blurring together for me anymore. The hospital stay seems like so long ago, but it wasn’t. And everything is still very fresh in my mind, body, and soul. It’s crazy to look back on it and see how far Ian has come.… Continue reading Ian Update
What a busy few weeks it’s been. It’s been almost 2 weeks since I gave my last Ian update. It feels like it’s been longer than that, and yet, my days are running together. If I wasn’t counting down the days until we can bring him home, I don’t know that I would know what day it is. Speaking of… Continue reading Ian Update