It’s been 40 days since Ian has been home. 40 days of learning to be patient. 40 days of learning how to not let anxiety completely take over our lives. Living day by day. And when that became too much, living moment by moment. But are we living? Or are we currently surviving? I think it’s the latter, but life… Continue reading Ian Update: Rehab
What a week it’s been. So many emotions. So much pain and fear felt. But also so much gratitude. And so many tears of joy were shed this week. Things started feeling like they were actually trending in the right direction. We’ve been told that Ian has been for the last couple weeks, but it never felt that way. Seeing… Continue reading Ian Update
It’s October. Normally our family’s favorite month. We all enjoy fall, doing fall activities, and the kids enjoy “spooky season.” We like going up to the mountains on a nice weekend to see the leaves all changing colors. Normally by now we start planning our traditional October weekend beach trip. But this year, instead, we’re planning Ian’s recovery. We’re planning… Continue reading Ian Update
It’s been one week since our world once again got turned upside down. It feels weird to write on my blog with everything that’s going on, but there is literally nothing I can do for my sweet boy right now. I feel helpless. And as a mother, that is the absolute worst feeling. It’s supposed to be my job to… Continue reading Ian Update
9.14.22 I don’t think today’s appointment has hit me yet. It wasn’t something that was on my radar as a possibility, so I think I’m still processing it. Ian was diagnosed with DNET brain tumors back in July of 2019. Fast forward to now, September 2022, we have always been told Ian’s tumors are low grade, which means they grow… Continue reading Ian Update: Surgery
What a summer it’s been with the kids. It’s hard to believe that next month, my babies will be back in school. Gabby is going into 7th grade; Ian is starting Kindergarten. Time sure does fly. As school time approaches, both Mike and I have been working diligently to try to get Ian ready for the transition. With all of… Continue reading Ian Update
6.2.22 One week before scan day. I did our June calendar earlier this week and completely forgot to put his scan on it. Maybe I didn’t forget, maybe I was just trying to block it out for as long as I can. Scan days bring a lot of depression and anxiety in the days leading up to it. I had… Continue reading Ian Update
In honor of Brain Tumor Awareness Month, I thought it would be a good time to give an update about our warrior. When my husband and I decided that we wanted to have another, the life we envisioned for our then-future-child was nothing like it turned out to be today. We had our boy name picked out since I was… Continue reading Go Gray in May
Scan day. It happens once every 3 to 4 months for the past 2 and a half years. That’s roughly a dozen scans at this point. And yet, things never seem to get easier. We should be used to this by now. Waking up at 4 AM on a Monday morning, leaving the house at 5 AM to be down… Continue reading The Days Before Scan Day
It’s been a while since I have given an Ian update. But with his next scan right around the corner, I figured it would be a good time to give an update. 12.17.2021 – Ian had his last MRI, which showed the tumors were still stable. We have an amazing oncologist who actually gave us the results in the waiting… Continue reading Ian Update