Hi everyone, In my last post, I mentioned a few things that were going on with Ian and some tests he had to have done, so I just wanted to give a quick update on those. The ADHD medicine had a rough start. It seemed like Ian was actually falling asleep in school this past week after taking it. It… Continue reading Ian Update
Yesterday, we had an appointment with the brain clinic. The brain clinic is pretty much the group of doctors, specialists, and therapists that we saw while Ian was inpatient for rehabilitation right after his tumor hemorrhaged. It’s a long appointment, but a convenient to see a group of doctors at one time who we have to follow up with due… Continue reading Ian Update
We’ve all the heard the expression “woke up on the wrong side of the bed.” And we’ve all been there, right? We wake up a little cranky, for no particular reason. To be completely honest, I’m guilty of this happening to me quite frequently. For me, I think it’s more so I don’t sleep well at night. I never really… Continue reading Gratitude
July 3, 2019. The start of it all. The day Ian had his first convulsive seizure. The day Ian had his first MRI. And in the middle of the night, hours into a new day, we would learn there were lesions found on Ian’s brain and that he would be taken down to MRI and put to sleep so that… Continue reading Routine Scan Day
It’s been almost a month since we first started this recent round of seizure medication adjustments for Ian. And we still haven’t quite got it right yet. Last week, we talked with neurology and told them we have still been noticing Ian having starring spell seizures 1-2 times a day. So, we are now on our third adjustment to get… Continue reading Ian Update
Would anyone like to join me to just scream? Scream into the world without having anyone to judge you for it? Just scream, and let it all out? I am so unbelievably drained from all we have had to fight for. We have had to fight for Ian in ways I didn’t have to before. I had put so much… Continue reading Another Ian Update
Our Christmas break didn’t quite go as planned. I’ve said this once and I’ll say it again: what in life ever does though? Christmas Day came and went. And the day after Christmas started off like any other day. Ian woke up, I got him and helped him down the stairs. He ate breakfast, and then we cuddled up on… Continue reading Ian Update
Eyes closed. It’s pitch black. You open them. But it’s still dark. You try to move, but you keep bumping into things. But you have no choice. You have to find a way out. So, you keep going. All while colliding with objects and hitting a wall. But eventually, you see it. A light. The light at the end of… Continue reading Finding the Light in the Darkness
On the morning of October 16th, I took Ian down to Children’s Hospital to get a 40-minute EEG after we noticed some “episodes” of what we thought might be seizures. He starts starring, gets wide-eyed, and becomes unresponsive. The results came back as having “abnormalities,” but no seizures were detected. As it has been explained to me in the past,… Continue reading Another Ian Update
You probably don’t remember much of anything from when you were little. I’m talking toddler age. The beginning of learning new things. You aren’t just learning how to throw a ball or learning all the colors of your crayons. You also learn some harder lessons. Ones that make you cry (because you’re also learning how to manage emotions at this… Continue reading A Chance